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A family's guide

The Children's Waiver, step by step

Even after years in this program, I still get confused about who does what. So I mapped it out the way it works for our family in Oakland County, Michigan. Other counties follow the same state rules but use different local agencies.

How it flows

Blue steps happen locally. The gold step is the statewide waitlist, which is why starting early matters so much.

  1. 1
    Your familyCounty

    Call your county's community mental health "front door"

    In Oakland County that's Oakland Community Health Network (OCHN) Access at (248) 464-6363. They screen your child and connect you with developmental disability services.

    Ask them directly about the Children's Waiver Program and the prescreen.

  2. 2
    CountyState

    Complete the Children's Waiver prescreen

    The county helps you fill out the prescreen and sends it to the Michigan Department of Health and Human Services (MDHHS), which gives your child a priority score.

  3. 3
    State

    Wait for a spot to open

    MDHHS keeps a statewide waiting list ordered by priority. We waited almost two years. Get on the list as early as you can, even if you're not sure you'll need it yet.

  4. 4
    CountyState

    Assessment and approval

    When a spot opens, the county assesses your child and sends a certification to MDHHS, which makes the final eligibility decision and Medicaid enrollment follows.

  5. 5
    Supports coordinationYour family

    Meet your supports coordinator and build the plan

    A supports coordinator (our caseworker is with Easterseals MORC) becomes your main contact. Together you write a person-centered plan that sets which services and how many hours your child gets, then follows up on authorizations.

  6. 6
    Your familyFiscal intermediary

    Choose self-determination and hire your own staff

    With self-determination, you recruit and hire your own caregivers. A fiscal intermediary handles the payroll side. Ours is The Arc of Oakland County, which processes new-hire paperwork and timesheets. For us, it took almost a year after approval before our caregivers started working, so start asking around for people while you wait.

  7. 7
    Your family

    Services begin

    Your caregivers provide community living supports and respite: help getting to appointments, building life skills, and time for parents to rest and care for the rest of the family.

Who does what

State

MDHHS

Michigan Department of Health and Human Services

  • Sets the program rules
  • Scores the prescreen and runs the statewide waitlist
  • Makes the final eligibility decision
County

OCHN

Oakland Community Health Network, the county's community mental health program

  • Front door for services (Access line)
  • Helps with the prescreen and assessment
  • Funds and oversees local services
Supports coordination

Easterseals MORC

Our supports coordination agency

  • Assigns your caseworker
  • Writes the person-centered plan with you
  • Follows up on authorizations and therapy referrals
Fiscal intermediary

The Arc of Oakland County

Handles the money side of self-determination

  • New-hire paperwork for your staff
  • Timesheets and payroll
  • Tracks hours used against your budget
Your family

You

The employer and the expert on your child

  • Recruit, hire and schedule caregivers
  • Approve timesheets
  • Speak up in planning meetings
Your team

Caregivers

The people who make daily life possible

  • Community living supports
  • Respite for parents
  • Rides to appointments and outings

Who qualifies

The basics under state policy

  • Under age 18 and unmarried
  • Has a developmental disability and needs the level of care usually given in an intermediate care facility, but can be cared for safely at home
  • Lives at home with parents or a legal guardian
  • Parents' income and assets don't count. Only the child's own income and assets are considered.

What I wish I had known

  • Get on the waitlist early. The wait can take years.
  • Keep copies of every evaluation, IEP and diagnosis letter. You'll be asked for them more than once.
  • Ask about the Family Support Subsidy, a separate monthly payment for some families of children with severe developmental disabilities.
  • Ask how many hours you're authorized for, and check your usage regularly.
Not in Oakland County?

Every county in Michigan has a community mental health services program that acts as the front door. Find yours on the MDHHS website, then ask about the Children's Waiver prescreen.